I don’t know if I told you that as a result of the Transverse Myelitis, I lost sensation in my lower body. What this means is that, if you ran your hand across my leg, I would not feel it or if you placed something very hot onto my skin, I would not feel that either. What I do feel in my legs is pressure. So if you squeezed my knee then I would feel that.
Back in July 2011, when I showered, I use to feel the warmth of the water on my upper thigh of my right leg, but that only lasted for a short while. Today, while showering, I felt the warmth of the water on the toes of my right foot! Yeah 🙂
That is how my body is handling heat and warmth. Now, cold is another sensation altogether. Cold water on my legs is terribly painful. I need to do some research on why this is so….. I will report back when I find out anything worth reporting.
I know what your going thru. I suffer from the same and what I have been trying to find out if other people have the painful feeling when trying to go into warm to cold water. I can shower w/o pain in the shower but only with hot, not scaulding water. I love to swim and now I cant because of this. I have about 1 year of this behind me and other symptoms are getting better. I no longer need to spend 8 weeks on a catheter. I can walk abit better, but wobbley. I fall once in a while, I have bowel control problems which seem to be getting better. But the inability to deal with cold water or even winter temperatures has really gotten to me.
Hello Jim, Let me apologize for the tremendously late response. I typically get a notification letting me know when someone has commented but I didn’t get one for your comment. For me, cold water is the worst! It feels like burning needles to my skin and then it makes my muscles spasm like crazy. I have to say, however, that this past month, my skin is less sensitive to the cold. I’m taking this as a good sign because now I’m also starting to feel the warmth of the hot water on the soles of my feet. I hit my three year mark last week and I reflected on all the progress that I’ve made and I just had to praise God for my continued healing. I think the lack of bowel and bladder control is just an insult to the injury – lol. My bowel control is getting better also and I was even able to push out a “poot” the other day all on my own. I know that may sound gross but it was a major accomplishment for me. Try not to be discouraged, but if you find that you are feeling that way just dont dwell in the negative. No matter how hard, stay focused on the positive.