UCLA Doctor
TRANSVERSE MYELITIS
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I have been diagnosed with TM in the last 4 months,mostly with weakness of the legs ,but I can drive ,walk for 15 minutes . Have no pain, minor sensory changes and minimum urgency for bladder. However, i have weakness in the lower extremities. I am on Decadron 5 tab , 0.75 daily for over a month. I was placed on Imuran and Methotrexate but had side effects and had to stop these. I am seeing an internist and a nerurologist. I am a retired physician. Live in San diego,CA. What is recommended
Hello Javad. First let me say thank you for reading my blog. Second, I am very sorry about your diagnosis. TM is a BEAST for so many reasons, all of which I am sure that you are aware of. I recommend that you do everything possible to maintain a positive attitude (which is very very hard to do) and continue to do things not related to TM that you are passionate about. It will be important not to think about TM every waking moment of your day. Surround yourself with people who are supportive and understanding and if you can’t do that then I recommend that you develop a thick skin (haha). I recommend that you keep laughter in you daily life and find a support group (Transverse Myelitis Folks on Facebook is a great group). Being a retired physician, you probably have better resources for recovery than most of us so use them to the best of your ability. Be strong and stay encouraged!